Comments on: Gaucher’s type 3

By: mel

mel — Thu, 08 Jan 2009 12:34:33 +0000

Ok…. so we have a starting point… and now the fight begins! You know that ANYTHING I can do, I’m there for you. That includes bone marrow donations. Tim and I can both be tested as a match. I’m going to do my own research too and see if there’s anything I can find to help.

You know you are all loved.

By: Kelly

Kelly — Thu, 08 Jan 2009 04:59:26 +0000

Carrie,
I am glad you finally have the news you need to gear up to fight your opponent. I will always keep Hannah and your family in my prayers. I pray for good news on the insurance front!!

By: Chris

Chris — Thu, 08 Jan 2009 04:52:44 +0000

Wow. Finally……an answer. I too will pray that you will get a type 1 diagnosis, but if it’s 3, I agree…… 15 years is a great amount of time. Especially with all the great stem cell research going on etc…… I’ll be thinking and praying for you all.

By: Andrea

Andrea — Thu, 08 Jan 2009 04:22:22 +0000

You have a very precious little girl! I couldn’t help but cry while reading Hannah’s Story and the posts about her condition, as I am always sad when an innocent baby faces obstacles. You are a very strong and admirable woman, she obviously knew what she was doing when she chose you as a mother–she was confident she would be wanted and loved. It is no wonder she is happy, she has everything she needs. I pray that she lives a long and healthy life. NEVER give up hope!

By: Nicole

Nicole — Thu, 08 Jan 2009 04:07:25 +0000

Your family will remain in our prayers–keep your faith–15 years is a long time when dealing with medical advances… Hannah is a very special child and she needs a very special mama! Take good care–I’ll be back to check on you and little Hannah God bless!

By: Kelley

Kelley — Thu, 08 Jan 2009 02:43:39 +0000

Well, I certainly don’t want to say congratulations, but it must be HUGE for you to know the beast Hannah is facing — and that it’s not the worst case senario. I’ll pray for a type one diagnosis (assuming that’s the best case senario) and easy answers to all the questions and worries.

Don’t forget that if you need my help with anything, I’m ready and willing to jump in.

By: melissan

melissan — Thu, 08 Jan 2009 02:16:39 +0000

On a monetary note, I’d ad adsense to your blog and also figure out how to collect donations…There are many of us out there that would like to help and would 1. check out ads that were on your site and 2. potentially donate to help defray costs. You could also try ads on your site through project wonderful.

Looks like you have the right attitude. 15 years IS a long time for medical advances and your positive attitude will take you far.

Keep us posted.

By: heather

heather — Thu, 08 Jan 2009 01:56:26 +0000

you must feel at least somewhat better to have something solid to go and “attack”. 20 years is huge for advancements in medicine. Or maybe the cord blood transplant could help?

By: Karen

Karen — Thu, 08 Jan 2009 00:50:11 +0000

I’m glad you have a starting point. I hope there is positive news on insurance coverage and you can get some direction.