Comments on: Cost of Hannah’s first Cerezyme treatment http://littlemisshannah.com/2009/02/cost-of-hannahs-first-cerezyme-treatment/ Our Fight against Gaucher's Disease type 2 or 3 Sat, 19 May 2012 03:14:40 +0000 hourly 1 http://wordpress.org/?v=3.3.2 By: brad reid http://littlemisshannah.com/2009/02/cost-of-hannahs-first-cerezyme-treatment/comment-page-1/#comment-502 brad reid Fri, 20 Feb 2009 01:39:50 +0000 http://littlemisshannah.com/?p=1089#comment-502 after reading you comments that we forwarded to me from greg, i noticed that you had said something like "moms" blogging comments. how about "PARENTS" blogging .. i'm sure you didn't mean to leave "dad's" out. it's ok, i'm sure you didn't even think about it. by the way what do you think about a "gauchers" bracelet, you know, like what they do for cancer ! i'd be in for that, i've donated i think a little over $ 90,000. to the foundation over the last 8 years, so a little more can't hurt.let me know when you get started. hang in there !!! brad after reading you comments that we forwarded to me from greg, i noticed that you had said something like “moms” blogging comments. how about “PARENTS” blogging .. i’m sure you didn’t mean to leave “dad’s” out. it’s ok, i’m sure you didn’t even think about it. by the way what do you think about a “gauchers” bracelet, you know, like what they do for cancer ! i’d be in for that, i’ve donated i think a little over $ 90,000. to the foundation over the last 8 years, so a little more can’t hurt.let me know when you get started. hang in there !!! brad

]]> By: Nancy http://littlemisshannah.com/2009/02/cost-of-hannahs-first-cerezyme-treatment/comment-page-1/#comment-500 Nancy Thu, 19 Feb 2009 23:53:10 +0000 http://littlemisshannah.com/?p=1089#comment-500 It's so expensive, isn't it? Unbelievable. My annual cost of medicine is about $200K -- thankfully my insurance covers most of it. I owe you an e-mail response as soon as I get some free moments this weekend. I'm so glad Hannah's first infusion went well and that you've been in touch with Greg Macres and other Gaucher experts. <abbr><em>Nancy’s last blog post..<a href="http://www.mommaamme.com/mommaamme/2008/12/book-lust-fairy-dust-or-is-it-fairy-lust.html" rel="nofollow">Book lust, fairy dust (or is it fairy lust?)</a></abbr></em> It’s so expensive, isn’t it? Unbelievable. My annual cost of medicine is about $200K — thankfully my insurance covers most of it.

I owe you an e-mail response as soon as I get some free moments this weekend. I’m so glad Hannah’s first infusion went well and that you’ve been in touch with Greg Macres and other Gaucher experts.

Nancy’s last blog post..Book lust, fairy dust (or is it fairy lust?)

]]> By: heather http://littlemisshannah.com/2009/02/cost-of-hannahs-first-cerezyme-treatment/comment-page-1/#comment-481 heather Wed, 18 Feb 2009 15:27:05 +0000 http://littlemisshannah.com/?p=1089#comment-481 is any of this covered by your insurance? is any of this covered by your insurance?

]]> By: Karen http://littlemisshannah.com/2009/02/cost-of-hannahs-first-cerezyme-treatment/comment-page-1/#comment-480 Karen Wed, 18 Feb 2009 14:24:56 +0000 http://littlemisshannah.com/?p=1089#comment-480 Wow. That is incredible. {shaking head} Wow. That is incredible. {shaking head}

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