I’m so sorry to hear of little Hannah, and we will pray that she doesn’t have NP-C! She is such a cutie, and my heart goes out to you and your family. It seems families with this kind of struggle and tragedy seem to immediately have an understanding. Please do hold out hope. There are some research projects that are being done this vert week that could really help our kids – cord blood stem cells “developed” by a doctor overseas are going to be injected into NP-C mice this Friday – and we will find out if there are any positive benefits within a couple of months.

Even though this suffering is unbelievable, and makes you are in the very garden of Gethseminie, our Merciful God is there to comfort you. I will keep you in our prayers, especially when we go to LA next week to see Father Fernando Suerez – a priest well known for having been giving the gift of healing from God. http://www.fatherfernando.com.

Please if you ever want to talk, you can call me at 541-772-5198.

Prayers and Hope for Hannah and your family.

Thank you for writing in our journal.

Laura, Bryan, Peyton, Kayla, and Jonah