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Hannah’s Story

Hannah's Story (text)
Additional Hannah FAQs
Recent Posts

03.12.10 So few seem to care about rare disease…why?

03.10.10 Fight for a Smile

03.09.10 Preparing for the National Institutes of Health Visit

03.06.10 Dealing with Cobra

03.02.10 Stealing pajamas

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More Gaucher's 2/3 Kids

National Gaucher Foundation
Hide and Seek Foundation
Keep Memory Alive
Neuronopathic Gaucher's Info
Book I Wrote
The Whole Story
- March 2010 (5)
- February 2010 (13)
- January 2010 (14)
- December 2009 (11)
- November 2009 (10)
- October 2009 (10)
- September 2009 (19)
- August 2009 (25)
- July 2009 (21)
- June 2009 (33)
- May 2009 (34)
- April 2009 (48)
- March 2009 (54)
- February 2009 (58)
- January 2009 (64)
- December 2008 (20)
- November 2008 (13)
- September 2008 (4)
- August 2008 (18)
- July 2008 (2)
Hannah’s Medical Team

* Dr. Amish Bhakta., pediatrician (best pediatrician in the world!)
* Dr. Neil Weinreb., Gaucher's specialist and Hannah's guardian angel!
* Dr. Raphael Schiffmann, Gaucher's type 3 expert and Hannah's neurologist
* Dr. Ozlem Goker-Alpan, NIH
* Dr. Ellen Sidransky, NIH
* Dr. Christine Eng., genetics
* Dr. Bryan Vartabedian, gastroenterologist
* Dr. Soham Roy, otolaryngologist (ENT)
* Dr. Timothy Vece, pulmonlogist
* Dr. Jeffries, cardiologist
* Dr. Woodbury, PMR
* Dr. Donald Mahoney., hematologist
* Dr. Beth Carter., hepatologist
* Dr. Kimberly Yen., ophalmologist
* Dr. Deidre Larrier., otolaryngologist, old
* Dr. Jane Edmund., neuroopthalmologist
* Michelle Barnes, nutritionalist
* Jenny, ECI - Developmental Therapy
* Pam, TCH - Physical Therapy * Pat, TCH - Occupational Therapy * __ - Speech Therapy
* __ - Vision Therapy
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