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Pages:
- In The News
- Help
- Contact
- Meet Hannah
- Pics and Vids
- Gaucher’s 2/3
- Hannah’s Gaucher’s Disease Awareness Video
Categories:
- Gaucher's Disease
- Hannah's Fight
- LMH Foundation
- Pics and Videos
- Random Thoughts
- Rare Disease
- Surviving
Authors:
Monthly:
- November 2013
- August 2013
- July 2013
- May 2013
- April 2013
- March 2013
- February 2013
- January 2013
- December 2012
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- January 2012
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- July 2011
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- July 2009
- June 2009
- May 2009
- April 2009
- March 2009
- February 2009
- January 2009
- December 2008
- November 2008
- September 2008
- August 2008
- July 2008
Recent Posts:
- So Long, Farewell…
- This is How I Parent Hannah
- Few weeks to go
- Little Miss Hannah’s “Rainbows in the Wind” Event – July 24th!
- The “Irrational” Stage of Grief
- Little Miss Hannah Continues to Impact our Rare Disease Community
- Little Miss Hannah Goes to Washington!
- Little Miss Hannah Foundation is Heading to Washington D.C. to Advocate for Childhood Rare Disease Awareness
- Scentsy Fundraiser for Little Miss Hannah Foundation
- I’ve Had a Magic Spell Cast Over Me
- Hannah’s Third Boston Marathon!
- The Nightmares Return
- Which is worse…
- GT23 Foundation – Gaucher’s Disease Type 2/3
- Please Remember…
- Moment of True Happiness
- My grass is a bit greener tonight
- Vivid Memories from One Year Ago Today
- Remembering Thanksgiving
- How am I going to do this?
- The Empty Cemetery
- Ladybug costume & DNR
- Hannah is making her mark!
- This time last year ….
- Dealing with the Triple A’s
- Unexpected Pangs of Jealousy
- Jumping into the Big Pond
- Bring on the pain
- Our Rainbows to the Sky Event
- Happy Birthday Hannah
- Tomorrow’s balloon release
- Hallmark Card for me…
- Weekend away…
- Las Vegas Review Journal Article on our family
- Two weeks and one day….
- Have the scales tipped?
- Dealing with the nights
- Mission and Passion and Help
- Ethan’s 5th grade promotion and speech
- June 7th – TGI Fridays – Will you be there?
- Fine Line of Balancing
- Hannah’s 4th Birthday Celebration ~ In a Big Way!
- Our first “public” outing
- How do you thank someone for treasured memories?
- Is your child undiagnosed?
- Hoping a flower makes a difference
- The Thrill of Momentum
- Fly Butterfly Fly
- The Giving Tree … keeps giving
- LMHF Embroidered Polo Shirts
- Signs of Hannah?
- Am I Grieving Enough?
- Abigail’s Angels … needs your help!
- Why a Simple Egg Means So Much
- Four months
- First laughs
- To the Gaucher type 2/3 community
- Big Sister Love
- Five stages of grief…yeah, right
- Understanding Sibling Loss
- “Official” is a great feeling
- Perchance to Dream…
- Price of Freedom
- If only Selena Gomez met Hannah
- Hannah is playing
- Brand New World
- To delete or not to delete
- What to do from here
- Little Miss Hannah’s Legacy Brings Awareness to Rare Disease
- You can rest now, Olivia
- In search of my missing piece
- Why I Celebrate World Rare Disease Day
- Speak, Crash, and Burn…and Breakdown
- Second Annual World Rare Disease Day School Event
- Building support
- Soundtrack of my heart
- “Time to Move on”
- Impossible to sum up
- Hannah won the pool…twice!
- Make-A-Wish, we are eternally grateful!
- Wordless Wednesday
- It all fits into a box
- Hannah’s fight against childhood rare disease
- It’s just friggin’ fabric!!
- The Wind is Messing With Me
- I’m going to be okay
- Hannah’s Legacy begins!
- Date Night
- “Finite”
- Sleeping Issues
- One month
- Meet our Mickey
- Tattoo Permanence
- Goodbye 2011
- Made it through
- Still trying
- Holiday spirit…a work in progress
- Hannah’s legacy is taking shape
- To My Hannah
- Candles are burning
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