It was great having Hannah home last night. She slept in a PackNPlay next to our bed. She ate every 3 hours, and I was on baby duty last night because DH was just beyond exhausted. I didn’t mind, although I only ended up with 2+ hours sleep because of the novelty of everything.
We went and saw Dr. B today, and he did another platelet level. She went down from 68 yesterday to 66. During our appointment, he excused himself to make a phone call to the Hematology group downtown at his “group” hospital (instead of the Hematology group of the hospital we were at). We have an appointment Wednesday at 11:30 AM to start a workup on Hannah to find out what the heck is going on. This is VERY exciting because this is the same hospital group that saved A’s life when the other hospital couldn’t figure out why they couldn’t get her pneumonia under control (and ended up needing surgery). THIS hospital is one of THEEE best children’s hospitals in the entire country, and I’m so excited to be able to have them work with us on Hannah.
Hannah was screaming louder than I have ever heard her when she was getting her blood drawn from a prick in the foot. The technician put a bandaid on it afterwards. When I got home and changed her diaper, I took the bandaid off. That little prick left a blood stain on the bandaid that was the size of a nickel and completely soaked. It was then that I realized how serious her condition really is. If a little pinprick takes that long to clot, we really have to be extremely careful with her. Dr. B said that if she has any bleeding that takes even a bit longer than it should that we need to take her to the ER directly.
She’s sleeping next to me on the couch right now. She’s so sweet and cute! Oh yeah, at Dr. B’s appointment, Hannah is already back to her birthweight at 2 weeks. Apparently that is great!
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