Contact

Want to send me a message?

Hannah’s Story

Read Hannah's Story
Recent Posts

02.03.12 Impossible to sum up

02.01.12 Wordless Wednesday

01.30.12 It all fits into a box

01.30.12 Hannah’s fight against childhood rare disease

01.28.12 It’s just friggin’ fabric!!

Subscribe

Enter your email address:
How to Help

Hannah Ostrea Fund
c/o Wells Fargo Bank
640 South Green Valley Parkway
Henderson, NV 89052

All funds will be going towards the creation of our Little Miss Hannah Foundation
Hannah’s Diagnoses

* neuronopathic Gaucher Disease
* severe hypotonia
* choreathetoid movement disorder
* left eye nystagmus
* supranuclear gaze palsy
* breath-holding spells
* brainstem dysfunction
* ocular motor apraxia
* global devedelays
* hepatomegaly
* splenomegaly
* vocal cord paresis
* reflux
* enlarged aorta
* decreased blink reflex
* slight eyelid retraction
* interstitial lung disease
* hypersensitive gag reflex
* food aspiration
* increased startled reflex
* diffuse ligamentous laxity
* genu valgus abnormality
* IgA deficiency
More Gaucher Children

Addison
Olivia
Emily
Emilka
Elizabeth (Zebby)
Kyle
Bailey
Marina
Stella
Lincoln
Joseph

CGRF Summer 2010 Newsletter

National Gaucher Foundation
The Whole Story
- February 2012 (2)
- January 2012 (13)
- December 2011 (16)
- November 2011 (23)
- October 2011 (25)
- September 2011 (8)
- August 2011 (8)
- July 2011 (10)
- June 2011 (11)
- May 2011 (13)
- April 2011 (14)
- March 2011 (29)
- February 2011 (29)
- January 2011 (22)
- December 2010 (21)
- November 2010 (15)
- October 2010 (10)
- September 2010 (15)
- August 2010 (10)
- July 2010 (15)
- June 2010 (31)
- May 2010 (20)
- April 2010 (11)
- March 2010 (10)
- February 2010 (13)
- January 2010 (14)
- December 2009 (11)
- November 2009 (10)
- October 2009 (10)
- September 2009 (18)
- August 2009 (25)
- July 2009 (21)
- June 2009 (33)
- May 2009 (34)
- April 2009 (48)
- March 2009 (53)
- February 2009 (58)
- January 2009 (64)
- December 2008 (20)
- November 2008 (13)
- September 2008 (4)
- August 2008 (18)
- July 2008 (2)
Contributing Blogger