Her eye doctor appointment went better than I expected. I kept thinking how much I hate getting those eye drops in for dilation and sitting there staring into those machines. How the heck would they get an almost 4-month-old baby to do that?
Well, they used drops that first numb the eyes that supposedly feel like water. They must have been close, because Hannah was a bit annoyed at first, but then she got over it. Then, about 5 minutes later, they did the dilation drops, and she took it very well!
We had to wait 30 minutes for the drops to set in.
Good news — no cherry red spots!!! Not sure exactly what this rules out, but I know it isn’t the NPC or Gaucher’s. But perhaps it is another type of disease that they can rule out. Her eyes are anatomically normal!
She is a bit delayed developmentally with her eyesight, however. It takes her awhile to find a noisy object. Sometimes, she just doesn’t find it and isn’t really looking for it. But when she does lock into something, she definitely can stay fixated on it. Definitely something to bring up to ECI tomorrow.
Another appointment down, another one tomorrow. Oh yeah, she has her ENT (ear, nose, and throat) doctor on Monday to check out her breathing and swallowing issues.
What I would give for some answers right now.
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