Offers of Help

I didn’t want to add this to my previous post because it is too important and needs to be separated…

I have been inundated with so many fantastic offers of help. If I knew what to ask for at this time, I would definitely take you up on it! A few people suggested putting a donations button on our website to help offset medical expenses, but until I know exactly what we will need in terms of therapies, insurance coverage, etc., I don’t feel comfortable doing that. Perhaps in the near future. But thank you so much for caring about us so much that you would offer! I did add the Google ads on the sidebar, so if you find something that interests you, please click on that — it helps!

I have so many ideas to expand my blog. I’m going to ask my web-savvy and blog-savvy friends for help in developing it into a 4-fold purpose:

1.  To follow Hannah’s journey as we WILL find a cure for gaucher’s type 3 and give Hannah a long and healthy life like she deserves.
2. To highlight other children with very rare medical conditions because I’ve realized that unless you have a “common” childhood disease, your situation will not get the exposure it deserves because there just aren’t enough people to give it awareness.
3. To become an information house for parents of other Gaucher’s type 3 kids.
4. To become a starting point for parents who just find out their child has a rare life-limiting or life-threatening condition on how to get help and services, especially since it can be lonely trying to find support when your child has something so rare that hardly anyone has heard of it.

So, if any of my websavvy and blogsavvy friends and visitors want to help with this part of my mission for this blog, please email me at the “Contact Link” above!