Finally all the pieces have come together for a treatment date. Thank goodness email is free because otherwise the amount of communication between all the parties involved would have cost a pretty penny!
Monday, February 9, 10 AM, for her first IV infusion for Cerezyme enzyme replacement therapy. We are doing it at the hospital’s infusion center so she can be closely monitored for side effects, etc. We are to plan to be there 3 hours (that should be interesting).
I’m relieved to know we are making a step forward. I’m just nervous about her reaction to the treatment now…side effects, developing antibodies, just not working, etc. But I can’t worry about that now.
This is the first step to giving her a better quality of life.
Any step is better than doing nothing. One step at a time.