I received this email from another type 2/3 parent, and obviously, it made me very concerned.
did read your latest post about Hannah being sedated and wanted to make sure that you check with a gaucher specialist before doing this… I learned the hard way.. my son was sedated for a simple MRI but as soon as the drugs kicked in he started with horrible breathing problems and we just spent hours getting him out of the sedation, no test was able to be done. Please be careful as to what they give her because if they relax her to much its very dangerous. Their involuntary reflexes are effected from the brainstem involvement so anything that relaxes that more is risky. Just a heads up to be extra careful.
Thank goodness she emailed me! I ended up asking both Dr. S. and Dr. E. about this, and here were their responses:
Dr. S.: I don’t know. Sedation always must be done carefully and for a good reason.
Dr. E.: The ABR is a shorter test than an MRI and lighter sedation is used. There is careful monitoring. Has Hannah been sedated for any procedures thus far?
Hannah never has been sedated before, so now I’m paranoid about tomorrow’s ABR test…
Praying for sweet Hannah for her ABR tomorrow.
Annie’s last blog post..Friday wrap-up
oh man! you would think they would know these types of things! good luck tomorrow…will be thinking about you guys.
We had the same problems with Avery. The 2 times after he had to be sedated he was on a vent it took a few days to come off. I would only do test if it is absolutley necessary.
I think that this is one of those cases where every child is different.
I will tell you that Connor has had both MRIs and ABRs done, and the sedation process is very, very different. With an ABR, they’re using a really mild sedative– just enough to keep them barely asleep. In fact, about three minutes after they stop giving it to him, he wakes up and is his usual happy self.
With an MRI, they have to use a much more potent one because they need to make sure that the little one isn’t moving, and that carries with it a higher risk. After Connor has an MRI done, it usually takes him about twenty minutes to wake up after they stop the sedation, and then he’s groggy for another half-hour afterwards.
The anethesiologist will stay with Hannah the entire time she’s under, and then they won’t let you leave until they are sure she’s fully concious and there aren’t any problems. They’ll be monitoring her very closely. I don’t know about Texas Children’s, but at both Children’s in Dallas and Children’s in Seattle they allow you to stay in the room the entire time so you can see how she’s doing for yourself.
Best of luck! I hope things go well for you. 🙂
Connor’s Mom’s last blog post..Medical Monday: Connor’s Chromosomal Condition (The Extremely Long Explanation)
I think that this is one of those cases where every child is different.
I will tell you that Connor has had both MRIs and ABRs done, and the sedation process is very, very different. With an ABR, they’re using a really mild sedative– just enough to keep them barely asleep. In fact, about three minutes after they stop giving it to him, he wakes up and is his usual happy self.
With an MRI, they have to use a much more potent one because they need to make sure that the little one isn’t moving, and that carries with it a higher risk. After Connor has an MRI done, it usually takes him about twenty minutes to wake up after they stop the sedation, and then he’s groggy for another half-hour afterwards.
The anethesiologist will stay with Hannah the entire time she’s under, and then they won’t let you leave until they are sure she’s fully concious and there aren’t any problems. They’ll be monitoring her very closely. I don’t know about Texas Children’s, but at both Children’s in Dallas and Children’s in Seattle they allow you to stay in the room the entire time so you can see how she’s doing for yourself.
Best of luck! I hope things go well for you. 🙂
Connor’s Mom’s last blog post..Medical Monday: Connor’s Chromosomal Condition (The Extremely Long Explanation)