I finished the script for Hannah’s video last night. It was very depressing trying to write a script that would share her story, what she has been through, and if we can’t find a treatment, what she has in store for her. I was very depressed when it was over.
Since I need to have the video done by February 28th, World Rare Disease Day, I started working on it today. I’ve made it about 20% of the way through before I started tearing up. And I’m not even at the “real” part of the video yet, just the introduction. I have to keep playing the pictures over and over again with the text, and it is almost like each time I have to view it to edit it, I am getting stabbed in the heart.
Heck, I’m blogging right now because I need a break from it. Right now, Hannah is sitting with Daddy on the living room floor (on the blanket), and Daddy, Big Boy E, and Little Girl A are attempting to play the game of Sorry. I say attempted because Little Girl A has no idea how to play, and it just really isn’t working out. Nothing like a little family chaos to bring me back to a place where I feel a bit better…
Wow, I am actually making a video dedicated to Josslyn right now..well it’s been in the making on onetruemedia.com for about a week now-but I was feeling the same things you are, depressed. Just seeing those pictures makes me relive those horrible times again and again. If you want to chat, you know where to find me.