If a parent is willing to try to save their child’s life, why the B.S.?
February 13, 2009 by Carrie
Filed under Rare Disease, Vents and Frustrations
As many of you know, I’m come to know and deeply care about Addi and Cassi Hempel, as I have talked to their mom on the phone on a number of occasions. She, as an advocate mom, is what I aspire to be for Hannah. They have Niemann Pick type C, and their mom is fighting so hard to save her daughter’s lives.
Take a moment to read her latest post, as it just pisses me off to no end why people aren’t willing to be more compassionate and willing to help a stranger save their child’s life!
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