This post has been a long time coming, but as I watch Hannah sitting here playing with her toy and smiling, I know now is a good time to do it. There are so many people I want to thank (I feel like I’m giving an awards speech) for their emotional support, financial support, and just going out of their way to help us deal with our situation with Hannah.
- Heather C., her family, and friends. From the beginning that we connected (and we haven’t seen each other in over 20 years), she has done so much — researching medical things, fundraising, creating awareness, etc. I feel guilty because it seems she spends almost as much time fighting for Hannah as I do! The least I could do is to share this wonderful children’s book that her husband has published — They are even considering donating a portion of all their books sold to Hannah’s cause! So please, please take a moment to check out his book – Monsters, Monsters, GO AWAY!
- Erin at LotsToSayBaby.com. She read how we kept losing pacifiers and that Hannah only liked the MAM kind. So she sent us out three of their pacifiers (just like MAMs) without any expectations, just because she wanted to help.
- Brian at StudioPress.com. Brian donated a copy of his popular wordpress theme to us so that we can build a better blog, a place not only for us to share Hannah’s story, but a one-stop place for other parents of Gaucher’s Type 2 and 3 to find a home. I can’t wait until it goes online!
- My oldest friend in the world, Julie. We have known each other since we were 4 years old, and when I put out the donation button, she not only was the first one to donate, but she was also the largest donation we have received.
- My uncle, Larry. He said something to me after we first got the diagnosis, and we were talking about the possibility of having to declare bankruptcy and losing our house because of medical expenses. He said “We won’t let that happen.” Five words. Just the fact that it was said was said meant so much.
- My brother-in-law and sister-in-law. My sister-in-law has been doing so much research into seeing whether or not her new baby’s cordblood (my new niece) would benefit in any way. She has contacted so many researchers and companies. My brother-in-law started fundraising for us before we even thought about doing it ourselves.
- My neighbor moms. I reached out to a few neighbor moms here about the possibility of doing a fundraising walk, and every single one of them said they would help. Already this fundraising walk here is taking on a bigger possibility than I could have ever done on my own.
- My other Moms on a Mission. Karen G., Lindsey S., Chris H., etc. I have learned so much from all of you, and I feel like I have known you all for so long. We are all fighting for our daughters together, and we will succeed.
- My loyal commentors. There are so many of you that continue to come back and leave not only words of support, but you leave comments for me to think about. The fact you take the time to point out things I may have overlooked or that you don’t think would be a good idea means a lot. It means you are really involved.
- Those who have donated money. We have had a handful of donations so far ($3200+ towards the mouse!). The fact that you were willing to donate to help us is wonderful. Thank you to Karen P., Julie E., Brian G., Heather C., Stacey T., Margret C., Todd W., Candice T., Carol C., Paula N., Sara M., Kelly D., and Alison D.
There are more people to thank, but Hannah is getting restless and wanting hugs. Gotta take care of that! I should do this more often. Please don’t take it personally if I didn’t mention you, I will do this again! You definitely deserve my thanks!!
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