Boy my little girl, you have kept me on my toes for 8 months now!!
You have grown so much the past month, not just in size, but in all the tricks you can do. I love watching you stand up in your exersaucer, “ba-ba-ba” to me, and laugh hysterically at the Wiggles still! What is it about Wiggle Sam Moran that makes you laugh so much? I am so impressed with your actual “baby steps” you take between Daddy and I when we hold body while you stand and walk. Sure, you still may not be able to turn over back to front yet, but I have a feeling you will be walking before you do!
You have an incredible way of charming every one you meet. You just have such an infectious smile that makes everyone want to cuddle you. God knows you have me wrapped around your little fingers with just that cute little grin! You even have your brother and sister totally in love with you. They can make you laugh so hysterically every time; is that why when they walk into the room, you get so excited?
We can definitely see your personality start to come out now. The way you you make that perfect frown when you are in your “I want…” moments. The way you are so independent and love to be able to play with toys all day long. The way you seem to be almost unaffected now with all the medical procedures, examinations, and pokes & IV sticks. You take it all in stride. I know, you really don’t know any different in that respect, but you are my hero.
I love you, my little Miss Hannah. I will continue to fight for you every minute, every day. I will continue to love you even more than that. We will celebrate on the 25th day of every month, celebrate another month of having you here with us, shining your smile and warming our hearts.
Happy 8th-month birthday, my beautiful girl!
Happy 8 Month Birthday Hannah!!!
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I’m so glad I came across your blog. My almost 9-month old son has finally been diagnosed with Gaucher’s disease. We’re still waiting on the results to find out what type he has, but they think it’s type 3.
He was admitted to the hospital when he was 3 1/2 months old because as you likely know, they thought he had cancer. We were there for 2 weeks, while they did test after test, then they sent us home and said they would be in touch in about 3-4 weeks when they had the results.
Months went by. Calls to doctors turned up nothing. My family doctor and pediatrician had no reports, no answers for me. Finally, 4 1/2 months later I got a call from the genetics/metabolics doctor, and she made an appointment for another month later. He had to have another skin biopsy because apparently the first one didn’t grow – but no one said a thing in all those months.
Anyway, it has been an emotional and frustrating time for us. It just makes me so angry that they just let our baby sit at home while his disease continued to progress. At this point, he has no neurologic effects showing – they said when they tested his eyes, the one time he turned his head, but the second time he didn’t do it. So they’re not really sure if he has type 3 yet, but they think he does. So we wait.
I’m in Canada, so I’m interested in doing what I can to raise money for research. Which is what led me to your blog in the first place. I’d like to keep in touch, because man, no one’s even heard of this disease because it’s so rare. So who do you talk to you know?
Take Care,
Melissa
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How time flies! 8 months! Happy Birthday Little Miss Hannah! I hope to meet you someday soon!
Carrie, you should see if she likes Sesame Street or just Elmo. Makena goes CRAZY for Elmo! Maybe something different to watch for BOTH of you!
What a sweet letter for a sweet baby. 🙂
That’s such a sweet post! I’m so happy to see her celebrate her 8th month.
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