Learning some interesting possibilities

I found out some really interesting information about a possible treatment assistance (not a full treatment) today regarding a pharmacological chaperone concept.  I’ll share more of the details once they go public.  However, after learning more, it may not be advantageous for Hannah because of her level of enzyme production, but I’m still going to see how this plays out.

It is good to know what is going on out there.

I have only found two researcher groups so far that are looking into GD2 and GD3.  I’m still looking though!