Hannah had her 5th Cerezyme treatment today, and it went really well.
Also, we didn’t get the results back from her DNA sequencing to tell us if it is type 2 or type 3 (see post below). I hate to admit I am not too terribly disappointed for some reason…
That’s wonderful that the treatment went well!
I can imagine you are still on your toes about the sequencing result even if you got a temporary reprieve.
B’s MRI is now April 8th instead of March 25th. Same as you I am not disappointed. But I am still anxious. For another 2 weeks I can pretend he doesn’t have (much) brain damage.
I was anxious to check in today to see if ya’ll had heard yet which type. I am glad to hear treatment went well, and we are all hoping for good news from you soon.
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I’m glad the treatment went well … and I hope for the results soon. I know it’s hard waiting.
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Its good to hear the appointment went well thats always a blessing.