Today, Hannah had her occupational therapist come to visit to work on her solids eating, as we have made very little progress in that area. It worked out perfectly, as Hannah was fed 3-1/2 hours earlier and JUST woke up from an hour-long nap. After M’s last visit at our house (Hannah would have nothing to do with it), I was so glad Hannah fully cooperated this time.
We did have some firsts today. After propping Hannah up in her high-chair with a towel, she would actually play with the baby food (we tried carrots and bananas, separately) on her tray. It was messy, but she enjoyed it! She didn’t give us the total rejection face that she used to when she “accidently” got it into her mouth. She also played with her little people in the food and put that in her mouth. Definitely an improvement from what we were doing previously! Who knew a little propping up on the high chair would help so much.
She still spits out her food most of the time and sometimes does a little, I don’t want to say “gagging” because that is more severe, but she does have that type of reaction at times when she swallows. Not every time though.
She recommended that we have a Hannah do a swallow study. Not necessarily because there is something obviously wrong, but because she felt it would be a good idea to see where we are at with her swallowing issues, especially since she is at high risk for swallowing difficulties (one of the symptoms of GD2 and GD3). Even though I know it is not going to be an easy procedure to do on Hannah, I have to agree.
I just want to know where we are at with Hannah. If there IS a swallowing issue, then knowing about it now would make it easier for us to figure out what we need to do to try and get her to eat solids. If there is no swallowing issues at this point, then we know that Hannah just hasn’t figured it out yet.
I sent our pediatrician an email about this since I’m not sure it if I should go through him or our lead doctor (Dr. E, genetics).
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