We seem to be getting into a routine already with Hannah’s Cerezyme enzyme replacement therapy treatments.
I leave the house around 7:45 AM or so, drop Abby off at preschool, and then head downtown to the hospital. The last couple of times, I have gotten there around 9:30 AM. We park in the clinical care buliding, and then walk across the bridge to the hospital tower. Up one floor on the elevator, and then we go to the Infusion Center check-in area. The lady at the desk already recognizes me and pulls out the paperwork for me to sign, every time.
We head into the Infusion Center after getting our paper work, and we end up in the same “room” (area with a drape to make it private). I put my stuff down, and the nurse hands me a bag with the IV, tape, etc., and sends me directly up to the 10th floor, the “magic” nurse who gets Hannah’s IVs in so easily (and on the first try today!)
Back down to the Infusion Center. I put in the Wiggles DVD, and Hannah gets glued to the Wiggles theme song immediately. They come in with her Cerezyme and a saline bag, and they start the Cerezyme drip and hook her up to the blood pressure machine that takes her BP every 20 minutes or so. We watch the Wiggles (same DVD every time, need to get more!), and about 45 minutes into it, Hannah falls asleep. Admittedly, I dozed off for about 10 minutes or so myself. I usually spend the rest of the 2-hour Cerezyme drip time and 30-minute saline drip time with a sleeping Hannah on me, cuddling her, and checking my text messages. I don’t mind it — it is guilt-free cuddle time!
After the drip is done, they take out the IV, and we are done! Today we didn’t have to wait the extra 30-minutes to see if she had a reaction since we have already have had two successful treatments without complications (thank you God!).
Then we head back home. We usually get home by 2:30 PM or 3:00 PM depending on traffic, just in time to get Ethan off the school bus.
Congrats! Great news that Hannah’s treatment went so smoothly! 🙂
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Yeah!!! That is great news that this is all going so well and smoothly 🙂 I really hope that it helps!!
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If she is anything like mine, you get a new DVD and she will be upset because it isn’t the other one. 🙂 Sorry it has to be routine, but so glad it is going smoothly.
I’m so glad to hear the treatments are going so well. It’s nice that you’ve got your routine down already.
I’m so glad everything goes so smoothly for you!
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I am thrilled that Hannah’s treatments are going so smoothly! We have a TON of Wiggles DVD’s (thanks to DH’s company doing the dvd printing). Joshua says he is “too old” for them & Kyle seems to only watch the latest one and the Wiggle’s Live in Concert.
PM me your address if you want them ok 🙂
It’s amazing how fast the medical world becomes your ‘norm’ and comfort zone isn’t it?? I am happy to hear that they got Hannah’s IV in the first try and that you and her both got some well deserved Zzz’s. Those are my favorite naps with Josslyn, when we are in the hospital rocking in the chair after a busy day. 🙂
I’m SO glad the treatments are going well. I’m praying for you and your family.
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