Today, we were supposed to jump right back into things by meeting with Jenny, Hannah’s developmental therapist. She still can’t do the back to front roll yet, as she can make it to her side, but she just can’t figure out what to do with her arm yet. She can sit by herself and balance pretty well, but she can’t get herself into that position by herself.
However, I am just exhausted after this trip and decided to cancel for today. I’m keeping Abigail home today from school because she is beyond exhausted and was really acting up yesterday on the way home. So, today, I’m going to concentrate on unpacking and doing laundry — we have a week’s worth of dirty clothes in there!
We have a lot of things happening just over this next week
~ Developmental therapy – every Wednesday, but cancelled for today
~ Swallow study, this Thursday
~ Hannah’s fundraiser meeting Thursday evening (hopefully!)
~ Dr. B, pediatrician visit on Friday
~ Occupational therapy, this Friday
~ Cerezyme treatment, this coming Monday
I’ll admit it. I’m scared to death about the swallow study. I just want the results to come back “normal,” but I know that they very well may not. Swallowing difficulties are one of the next symptoms we have to watch out for with her. Although she doesn’t seem to have any swallowing issues yet (I attribute her lack of eating solids is because she doesn’t like US feeding her, as she has learned to have no problem with the food if SHE gets the spoon in her mouth).
Hope you have a smooth day and can ease back into things. 🙂
hope you had a great trip with your family – having some much needed fun – but glad to have you back!
busy week – good thoughts for tomorrow’s test.
Hey Carrie! It took Josslyn a long time to be able to roll from back to front and she was also sitting by 6 months old but just couldn’t get into that position on her own. Most likely, due to their enlarged liver and spleens. Josslyn didn’t crawl until she was 15 months old. With her being so short it was difficult for her to be able to get that belly off of the floor. Now at 19 months she’s almost walking. So just to give you some hope..Hannah will get there. Just in her own time. Before Josslyn started crawling she’d roll to get everywhere she wanted to and it took her a while to be able to bring herself up to a sitting position.