More Therapy?

After receiving Hannah’s 8-month DAYC assessment, our pediatrician recommended adding some private therapy to Hannah’s regimen.  Our goal is to teach Hannah as much as we can now so it will take longer for her to lose what she knows once the disease progresses.  Also, since she is somewhat delayed in some important areas, it is important for us to keep working on getting her as caught up as she can.

He set us up with TCH’s therapy department, and fortunately, they have a clinic up here in The Woodlands so we don’t have to drive downtown.  We have three separate evaluations, one in May, and two in June – for PT (physical therapy), OT (occupational therapy), and ST (speech therapy).  Once we meet with them, they will give us their recommendations as to what they suggest, and we will work with our pediatrician to come up with a balance between the private therapy and ECI.

I have to talk to the TCH therapy department this week, however, to find out how our insurance covers this type of service.  Our bills for our bi-weekly Cerezyme have been coming in, and our part averages about $580 every two weeks (the bill originally is about $15,000 every two weeks).  It is killing us.  I just hope the therapy is covered more fully.