Okay, I admit it. I’m scared to death about this swallow study this afternoon. Not about the process itself, although I question how they are going to get her to eat solid food from a spoon if *I* can’t even get her to open her mouth to eat it.
I’m scared to get the results. It is almost like a crossroads type of result. If it comes back “normal,” then we know the progression of her disease is slower than expected, which would be awesome. If it comes back “abnormal,” then we know the disease is progressing and affecting her swallowing, which is one of the next symptoms to look for.
I have heard from a few people who have had this done before, and there seems to be a mixed answer about getting results. Some people have gotten preliminary results right then and there, some people had to wait.
I don’t want to wait. Please, please, please, please, please let the results be normal. Please let her few eating quirks be just that…quirks, and please don’t let them be related to her Gaucher’s disease.
Oh yeah, she slept in her crib until 5 AM this morning! We’ll try again tonight, maybe 🙂
My heart goes out to you.
Hugs
Laane’s last blog post..Being tired from autism
Best of luck– we’ll keep our fingers crossed for you!
~Jess
Connor’s Mom’s last blog post..Snake, Snake, It’s a Snake!
I have my fingers crossed and am praying for Hannah. Looking forward to hearing the results.
As I read your posts about Hannah, my heart goes out to you and your family. I can’t even begin to imagine the emotions that go through you concerning her and the rest of your family.
Thank you and I hope the swallowing test went well.
Susan Williams
So how did it go? I guess I’ll check on Twitter and Facebook to see if there are any updates. I know this can be nerve wracking, but try not to worry. Hannah is a very strong little girl!
Petula’s last blog post..Earth Day giveaway at Cutie Booty Cakes
We’ve got our fingers crossed for our favorite little Texan!
Cristina’s last blog post..Well-baby check and more test results
Praying for good results…