Nicole, Greyson's Mom, and Hannah
We made it through our first week of summer with Abigail home and Ethan at camp. We survived! And it really wasn’t so bad. One week down, many to go!
We have a lot going on this week:
Monday: Cerezyme treatment, all day
Wednesday: Physical therapy at TCH
Thursday: Orthotics fitting, Occupational therapy at TCH
Friday: Pediatrician visit, Developmental therapy at home
Sunday: Father’s Day and tentative Greyson’s Law Celebration (about 3-hour drive from home!)
Tomorrow should be interesting. Abby is home tomorrow, so she is going to come downtown with Hannah and I to the hospital. Daddy is going to meet us there (since he works 5 minutes away), and he is going to take Abby to lunch and to his office for an hour or so. Then, he is going to bring her back to the hospital towards the end of the infusion, and then I’m going take both Abigail and Hannah home.
Abby is SO excited to visit “Daddy’s work.” What is it about a child visiting their daddy’s work that always seems so exciting to them? I remember visiting my parents work when I was little, and it was always such an awesome feeling being able to go into this whole new world. She is so looking forward to it!
I just hope Hannah’s treatment begins on time tomorrow, because I am not looking forward to having to deal with Abigail while being tied down to an infusion chair with Hannah for more time than necessary! 🙂
Wow– sounds like a busy week!
~Jess
.-= Connor’s Mom´s last blog ..Play Day! =-.
Hi there!
I’m just stopping by to say hello and to see how Hannah is doing.
Take care.
Busy bee 🙂 Are you not able to walk with Hannah in her stroller or put her in a carrier?
Kyle isn’t “tied” down for treatments. We stay in the room for the first hour because they check his blood pressure every 15 mins., and then after the first hour they check it every half hour. So I put Kyle in his stroller, pushing him with one hand and pushing his IV pole with the other.
He also loves being put in a carrier, which is easier because I just have to walk and push his IV pole. We even made a trip to the cafeteria the one day. As long as I get back to the room every half hour for his BP check, we’re free to roam 🙂