There is a discussion on our GD23 family list regarding the personal choices made by different families on whether or not to trach their GD23 babies. The families were so passionate about their decisions, and I was able to see both sides of that decision very clearly. So many heartful and painful decisions such as siblings perceptions vs quality of life vs increased medical intervention. I understood every single point of view, even though many of them conflicted with each other.
And then it hit me. There is a very strong probability that we may be faced with that decision with Hannah sooner than later. Breathing issues due to a “floppy” throat are very common, especially with GD2 and younger GD3 children.
I don’t want to be faced with that decision. I hope we never are forced to make that decision.
I think that is one of those decisions that you could discuss now and make a firm decision, but then if/when the time came have a totally different view. I too pray you never have to make it.
I think you just have to wait and see what happens. It’s easy now to say you’d go one way or the other, but you just have to wait and see what life brings you!
I am SELFISH!!! If I was in your shoes, I would do everything in my might and medical might to have a few more day’s with my Little One. No I am not in your shoes but we have medical issues so I do understand where the thought process comes from. For everyone it is a personal choice and it is not by any means an easy choice.
Hi!
I have been following your Hannah’s story now for awhile and I think you guys are doing an amazing job! I pray for you and every decision tha you have to make for her..I imagine some are so hard!! Praying for you and your sweet baby Hannah! 🙂