My beautiful sleeping girl
Ethan and Abigail start school in two weeks. Yay! This year is going to be a very interesting one because Abigail will be starting Kindergarten at “her brother’s school,” and Ethan will be going into third grade (of which he is taking the gifted and talented math and science courses).
I am so ready for school to start. Mostly, I am ready to get into a routine. We have been so out of a routine this summer, and it has really thrown me for a loop into chaos. I have had such a problem getting things in order!
But I do have a list of things that I have to get settled and started very soon (that relate to Hannah and me, not the other kids):
- Finalize initial appointments with Cardiology (pending), the new ENT (8/31), and Pulmonology (pending).
- Followup with all the researchers I have contacted in the past six months to see where things stand
- Work on finding a way to get the Parkinson’s community to realize that our nGD kids can possibly offer some insight into PD – anyone know how to get a message to Michael J. Fox?
- Start my special education teachers credential that I was midway through when I found out I was pregnant with Hannah (classes M/W nights and Saturday)
- Start looking into a workable therapy schedule to be able to fit PT x1, OT x2, ST x1, DT x1, and Vision therapy x1 each week.
- Work with the National Gaucher Foundation, Genzyme, Children’s Gaucher Research Fund, and other groups to see if there is something we can do to further research and awareness.
- Start looking into getting Hannah into a social type of playgroup so that she can get experience around other children.
- Get more involved with TheProjectCharity.org, 5minutesforspecialneeds.com, and other rare disease and special needs outlets.
- Figure out how to be a better housewife by learning to schedule laundry, cleaning, and menu planning for dinners.
- *** Start working on a fundraiser to start raising $$$ to be able to hire researchers to work on finding a cure!
The list looks pretty daunting, but just writing it down is the first step. I know there is probably more that I am missing, but once I figure out how to start organizing my life then I can hopefully just plug it in.
Wow, where to start…
Carrie you already are a perfect housewife…with all that you do I’m sure you do the best you can. I still haven’t figured it out so if you do please share.
Lists are good for me because it helps me not worry so much about what I am forgetting because I know what is on my table. 🙂
Yes, it seems like a lot, but – you’re right – it’s good to get it written down. Just start at the top and take care of everything one at a time adding to your calendar as you go along. You may want to prioritize the list too (if you think it will help you).
My two middle children go back to school tomorrow and Andre will start kindergarten. He’s excited. Amber returns to college on Thursday. Busy, busy! I know you know what I mean. 🙂
you know I am here to help…so delegate!
I know you’ll get it all together!! 🙂
If no one you know has an “in” for Michael J Fox, then just send him a letter through his foundation:
The Michael J. Fox Foundation for Parkinson’s Research
Church Street Station
P.O. Box 780
New York, NY 10008-0780
I would assume they have them in your area as well, but have you considered center based EI for Hannah? This is essentially a preschool for kids who receive EI. While she was at school she would receive all of her therapies. She obviously would be socialized as well (for the most part, the “babies” which Hannah would most likely be considered do not have “peer models” but in the “older” classes there are typically developing kids in the classes as well). Sometimes for kids that get a lot of different therapies center based is a good option. Another idea is that my son has a DT, and instead of her coming to the house, we go to a play group that she runs. DT + socialization. At any rate some of these even pick up and drop off the kids on a school bus (kids are in car seats, obviously). This might help with you doing things around the house and studying for school.