Addison Bower Walk (Video)

September 21, 2009 by Mommy
Filed under Life with GD23

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Addison Bower Walk

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Hannah’s Story

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02.09.12 “Time to Move on”

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Hannah Ostrea Fund
c/o Wells Fargo Bank
640 South Green Valley Parkway
Henderson, NV 89052

All funds will be going towards the creation of our Little Miss Hannah Foundation
Hannah’s Diagnoses

* neuronopathic Gaucher Disease
* severe hypotonia
* choreathetoid movement disorder
* left eye nystagmus
* supranuclear gaze palsy
* breath-holding spells
* brainstem dysfunction
* ocular motor apraxia
* global devedelays
* hepatomegaly
* splenomegaly
* vocal cord paresis
* reflux
* enlarged aorta
* decreased blink reflex
* slight eyelid retraction
* interstitial lung disease
* hypersensitive gag reflex
* food aspiration
* increased startled reflex
* diffuse ligamentous laxity
* genu valgus abnormality
* IgA deficiency
More Gaucher Children

Addison
Olivia
Emily
Emilka
Elizabeth (Zebby)
Kyle
Bailey
Marina
Stella
Lincoln
Joseph

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