After three rough nights, it is time for help

Hannah is finally napping right now. 

She is so terribly congested that consistent sleep has been elusive these past few nights.  After her first rough night, we have had two more of them.  So we have an appointment to see our pediatrician this afternoon. 

I am so fearful that this is the beginning of something terrible, like needing to go ahead with a trach, or laryngospasms, which are pretty common in nGD children, especially type 2 kids.   I keep hoping that it is something simple like just really bad reflux mixing with the congestion or something. 

I honestly have no idea.  All I do know is that she will wake up suddenly, panicked, as if she can’t breathe.  I hear her upper stomach or lower chest grumbling a bit on occasion when it happens.  The episodes only last anywhere from a few seconds to last night’s episode at 2 am that lasted almost a minute and freaked the hell out of my husband and I.  As I was holding Hannah in her room during that episode, I was thinking “do we call 911 now?” 

We are all exhausted.  I could have crashed at 6:30 pm last night, but with three kids, that didn’t happen.  I’m on incredible slow motion today.  I can’t even imagine how my husband is functioning at work right now, as he has been up all night too.

I have no idea what to expect after this afternoon’s appt with Dr. B, our pediatrician.  Hopefully, it will just be something simple and “normal” (in terms of baby stuff).  But then there is another part of me that says, “this disease is progressive, it is going to happen at some point, this may be the point.”  I just don’t know.