I read an article a while back that when you are going through this “special needs/life-limiting disease” lifestyle change, you need to find just one person who you can connect with completely. Someone who understands your fears, your chaotic thoughts, and your many stages of grief. It can’t be your spouse or family member, the article said. It had to be someone else who is invested personally in this journey.
I feel so lucky to have found my “one person.” She is a mom who has a child with similar issues as we have been presented with Hannah.
There are so many emotions that I have been feeling over the past few months, and she is the only one who I can come to completely about my thoughts, not worrying if I’m not being politically correct or not. Just laying my feelings out there as they are — raw, naked, and the complete truth. She gets me. She is living the same thing I am to some extent, and she and I just have that understanding.
I think this relationship was solidified when we were able to meet in person. She is no longer just an email address, but she is a mom who I can share laughs with about the ridiculousness of some of our situations, the fears that we both face with losing our children, and the stresses about transitioning to a special needs lifestyle from one where I was told my child probably wouldn’t live one year.
I am so so so so so so thankful for her.
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