It is hard to believe that we are already planning our next NIH visit! I wonder what DC is going to be like at the end of February when our next visit is tenatively scheduled. It isn’t going to be as in-depth as our first visit back in July, but I think they are going to do another EEG, BAER, meet with PT and OT, and a neurology consultation again. I’m not sure what else they are going to do yet.
As silly as it may sound, my “hope” for our next visit is that Hannah will be walking “with assistance” between me and my husband. I would love to be able to walk into the National Institute of Health’s building with a walking toddler. That would show amazing progress! I’m not getting my hopes up on it happening, but she is doing so well these days and can walk about 3 or 4 feet when holding our hands with her in between us.
Next week we pick up her new SMOs (ankle braces). I let Abigail pick them out, and she picked out Hello Kitty design. Hey, it almost was Miley Cyrus, but I nixed that idea! Hard to believe it has been almost 7 months since we got the old pair. Her feet have grown!
Hannah’s 18-month birthday is coming up in two weeks. Makes me happy!
It’s going to be cold! Do you all have winter coats???? That would be incredible to have Hannah walk in there with assistance!