Hannah's EEG at the NIH, July 2009
Hannah had her sleep-deprived EEG yesterday.
Considering she had woken up at 5:30 am on her own (she was hungry) and I had to keep her up until 1:00 pm, she did pretty well. It was much more involved than the EEG she did at the NIH where she slept the entire time, especially when they put on the electrodes.
Unfortunately, she did NOT like the electrode placement. She was exhausted, having someone mess with her hair with goop and gels, and she just did not want to have any of it. But she made it through, and she went right to sleep as soon as she the technician walked out of the room.
They let her sleep for about 20 minutes or so, then they had to wake her up for another 20 minutes or so. She did not want to be woken up, but she was somewhat willing to play toys with me in the bed. Then they did the photic stimulation strobe light thing for about 5 minutes (talk about annoying!).
Hannah's EEG at the NIH, July 2009
The entire process was almost 2-1/2 hours. I’m so proud of her. She really did fantastic considering we couldn’t really explain things to her plus the fact she was just exhausted. Surprisingly, she did not fall asleep on the way home, but she did take a nap around 6 pm for about 30 minutes, and then fell asleep for the night around 8:30 pm.
We should get the results in a week. In my heart, I really don’t think she is having seizures. I hope to be proven right.
Well we know she is a trooper. I pray for good results next week.
OMG I hated when I had to get EEG’s but they have come a long way. They used to use this glue and would dry it with a blow dryer and you had to put a wet towel over your face so you wouldn’t inhale the fumes because they were toxic and could cause lung cancer….and chunks of hair would fall out….chunks! Also they used to glue them down your spine and it was so HEINOUS. They aren’t nearly as terrible as they were in the 80’s and early 90’s, so I feel your pain. My poor parents used to bribe me to sit there for them with like insane toys but even some times I would put up a fight if I really didn’t feel good that day.
Alexa hated doing her EEG as well. She cried the whole time they were putting the electrodes on. Hannah is still in our prayers.