When I checked at 5 pm to see if I got a room tonight at the Ronald McDonald House, I was bummed to find out I didn’t. As I settled into the recliner in the PICU waiting room at 11 pm, I got an excited message from the PICU receptionist saying that there was an opening and to go upstairs and get my key! Seriously, I felt like I won the lottery!
Anyway, today was a very mellow day. Hannah did well through the night with some occasional agitation, but nothing like previously. Then again, she is on so many dang meds including a paralytic drip that it was surprising she was agitated at all. During rounds today, the docs saw her being agitated and were shocked. I don’t know why it shocks them anymore, but maybe since this is the first time they have seen it, they realize the nurses weren’t being dramatic or something!
Because she was completely out of it, I spent quite a bit of time up at the RMHouse. I had breakfast up here, took a 2+ hour nap, and did my laundry up here. Nothing like wearing clean clothes after recycling them for a week or so! I spent a lot of time just sitting in Hannah’s room watching TV.
Dr. Roy called to check on Hannah this morning, and his partner, Dr. Albright, came to check on her when I was up at the RMHouse. From his notes in her chart, everything with the trach and the trach site look “great.”
Tomorrow is going to be another heavily sedated day, but hopefully Monday we can start coming up with a game plan to get my Hannah back!
Oh yeah, Daddy and the kids, dogs, and cat made it to Flagstaff, Arizona tonight. They should hit Vegas tomorrow!
What was your (and the nurses’) impression of Hannah?
I am glad you had a quiet day–you certainly needed it!
Hope you get lots of uninterrupted sleep tonight, caravan Ostrea makes it safe to Las Vegas, and Hannah is feeling better tomorrow!
Love and hugs!
Glad you had a quiet day. If you have not found a company to fly you I saw a billboard for Miracle Flights for Kids in Vegas.
It sounds like the kind of day you needed. Hoping that you were able to get good sleep last night too since you had a room and that today is just as peaceful.
Much love…
That was a blessing you got a room and was able to relax and wash clothes. Little Miss Hannah is showing them all what she is made off. She is one TOUGH COOKIE, so no one should be surprized with the agaitation even with all the med’s. Praying for a super healing day, and a good game plan on Hannah waking up so her a mommy can finally get some good cuddles and smile time in. Take care of yourself. Good to hear the rest of the family is making good time too.
I’m glad you had a day to relax. Hope things continue in this direction!
Real glad to hear you had a relaxing day and was able to do some laundry and catching up.
Yvonne has been updating me on Bobbys travel to vegas and glad to hear they arrived in AZ and will be in Vegas by this afternoon. They have all been getting things ready for their arrival . You are so lucky to have such wonderful, loving and caring IN -Laws. Its so great to have all that support!
We pray that Hannah heals quickly from her sugery and is able to be in your arms once again. Im sure she misses you as much as you miss her. What a little FIGHTER she is, just like her mommy!!!
Take care Carrie and stay strong.
Love,
Susan