Bumps in the road

Today was a rough day.

It started when we found out that the people who put the offer on our Texas house are terminating their offer because they “talked to someone on our street” who told them the reason we had lined our backyard with bricks was to control flooding during the rains, which is totally not true!   We put the bricks around our backyard so our littler dog could not get under our fence.  Besides, who in their right mind would think that one layer of bricks around a yard would even control flooding!

Doesn’t matter at this point, I guess.  It seems as they are terminating their offer, and we have to put the house back on the market.  Too good to be true.

We met Dr. Kami Larsen today, Hannah’s new pediatrician.  She seems like a good fit for us so far.  It was a pretty easy appointment, especially now that we are just in the recovery mood, and we had already seen almost all of Hannah’s new specialists.   She was chosen for us because she has a reputation for being really good with “chronic complicated kids.”

We got our handicap placard today as well.  Dr. Larsen made no hesitation in signing our form.  The part that hit me in the gut was that she said this disability (unable to walk without assistance) is a permanent one.   I was hoping she would be the “moderate” disability, as in 6 months to 2 years.  But in the long run, I guess it is best.  Our handicap parking placard is good until the year 2020.  Yep, 10 years.

I would have never have thought about getting the handicap placard before this hospitalization.  But seeing how weak Hannah is now and with this Vegas heat, we have been dropping her and me off in front of each of the specialists buildings because she just wilts in the heat now.   At least this will save us having to walk with all her accompaniments now (loaded diaper bag, Gtube supplies and trach supplies, and suction machine).  It is no longer just a “pick up and go somewhere” plan now.  We have to bring everything with us.

Hannah had her speech and occupational therapy evaluations a couple of days ago.   Hannah slept through all of her speech evaluation and most of her OT evaluation.  But it was fine.  We mostly talked about Hannah’s history, where she was at, where she is at now, and what we hope to get out of therapy.  They both recommended twice a week, but I am trying to weigh too much therapy plus the 20-minute each-way drive versus not going twice a week.  Plus, not to mention, she also has physical therapy once a week starting this Monday.

Tomorrow is a new day…