
The best PT in the world is Hannah trying to watch her Mickey Mouse Clubhouse and working those leg muscles. It is a lot of work for her, but she thinks Minnie mouse is worth the effort!
Daddy is out of town this week for training for his new job. He left Sunday night and will be back late Friday night. I’m so excited that he has a new job, one where he gets to work from home much of the time. But being home for a week with me and the three kids had been stressing me out the past couple of weeks.
Yesterday was ridiculously rough. It started with me only getting a couple of hours sleep because I still stay up until 4 am to keep an eye on Hannah every morning. I had to get the kids up and ready for school (thank goodness we carpool and another mom does the morning shift!) and then head off to Hannah’s Cerezyme infusion. I crashed for about an hour during the infusion while she napped on me for about 90 minutes. The last 45 minutes she was thrashing around, awake, and wanting to get off my lap and go play. Can’t do that when you are hooked up to an IV!
We got home around 1:45 pm, and then I had to pick the kids up from school at 2:45 pm. Rushed to help Abby with her homework, and then I took Abigail to her Daisy Scout initiation meeting. Got home around 5:15 pm, and my father-in-law surprises us with a homecooked BBQ dinner — what a godsend! Got the kids showered and ready for bed. I fell asleep around 1:15 am. Fortunately, Hannah did really well last night, so I got to sleep for 3-1/2 hours until she woke up at 5 am.
Oh, did I forget to mention that on the way to the Cerezyme appointment that I got a call from our nursing agency and that our normal Monday nurse called in sick? I was stressed out big time until they called me about a few hours later to tell me they got us a backup nurse! I felt absolutely horrible for Abby because this Daisy Scout thing is a huge deal for Abby, supposed to be just Mommy-Abby time. I didn’t know how I would work it. Fortunately, our backup nurse came to our rescue (came straight for another shift to help out for a few hours so I could get my carpool and Daisy Scouts done).
Today, we had it much easier. Our normal nurse was back, and as soon as she showed up at 9 am. I went upstairs and crashed from 9:30 am until about 1:30 pm. I woke up so much more refreshed. Took a long shower. Came downstairs to play with Hannah for a bit and then headed off to the pick the kids up from school again.
I tell ya. I give my single-mom friends a lot of credit, especially those of you with multiple kids and/or special needs kids. It is absolutely nonstop, constant.
On top of everything else, Hannah had been sick for the past few days, throwing up for a couple of them. But today was the first day that she seemed finally on the mend.
This week has already proven that moving from Texas closer to family was the right idea. My inlaws have gone above and beyond for me this week, constantly checking on us, bringing us dinner, and there is just a sense of peace knowing that they (and my brother-in-law and sister-in-law) are just 20 minutes away if I need them. It is a sense of security that we never really got when we were in Texas.
Daddy comes home late Friday night, and then he starts his new job on Monday. I’m so excited for him. He did not do well being unemployed at all. He will be on the road quite a bit during the days. A few times a month he may even have to go up north since the entire state of Nevada is his territory. But his home base is right here…at home. It is a perfect scenario for us.
Whew! I know it is a handful especially with Hannah’s needs. I’m glad the backup nurse came through, that you got some sleep, that your husband got a new job that fits the family and that you’re close to family! That’s wonderful. I love seeing Hannah getting up to watch Minnie & Mickey and can’t wait to hear more about Daisy Scouts.
What a relief it must be to all of you that Bobby has a job and something thats in his field and he gets to work from home for most of the time. So happy for all of you especially Bobby cos it must have been so frustrating for him being out of work all this time.
On the other hand you are so overwhelmed trying to cope with Hannahs needs as well as Abby and Ethans, plus you are loosing even more sleep, that cant be easy on you! So glad that they sent you a backup nurse quickly and that you managed to get some shut eye when your normal nurse came the next day, you poor thing u must be exhausted!
Yes its so true that moving to Vegas was the right move. The fact that you have family around to help you out especially at times like this is essential! You are blessed to have your in laws close by and that they are always there for you! How nice to get that surprise BBQ dinner!
I pray that things will continue to look up for you and the next good news will be that your house in Texas is sold!
What a cute picture of Hannah watching Mickey and Minnie!!
Love,
Susan
I am thrilled that your husband got a new job. I am sorry you had to go it alone all week. It is great that you have family that help take care of you while your husband is gone.
I love the picture of Hannah watching Mickey and Minnie. They really must be worth the effort. 🙂
It’s great that the choice to move was a great one! Hannah seems to be doing so well!