Hannah’s spleen and liver seemed to be getting larger again. We made huge progress in shrinking them down when she started her Cerezyme treatments back in February 2009, but I’m a bit concerned as to why they are starting to grow again.
Dr. Bernstein, Hannah’s local specialist, scheduled Hannah to get a CT of her abdomen today at 11 am so we can see exactly where we are at. We can compare this to the CT done back at the National Institutes of Health back in March of last year.
What makes me really nervous is that she has to be sedated for this CT. After all the problems with the sedatives this summer when Hannah was hospitalized, even using any amount of a sedative is making my stomach anxious.
But I know this is important. We need to have this information.
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