Cooper, Hannah’s sweet little therapy friend from Texas, is losing his battle with mitochondrial disease. What this little boy has gone through in the past year, even just in the past few months, is just excruciating.
Why does there have to be so much pain with these life-limiting diseases? Why do our children have to suffer so much pain in top of everything else they have to deal with?
I remember talking to a mom who lost their little girl to Gaucher’s. She told me about 3 days before her daughter passed that she was ready for her daughter to go. She was emotionally exhausted by the constant seizures, oxygen desats, and suffering that her baby daughter was experiencing. For almost two months, her daughter was ‘end stage’ (as she called it), and it was just….cruel. I don’t know how else to describe it.
Now when I listen to Sarah talk about Cooper, I feel that same anger building up in me. Why the hell does it have to be so excruciatingly cruel?
And the selfish part of me wonders…never mind.
so sad- what a horrific disease. i hope they get to bring him home and hold him where it is that he wants to be. Hoping for peace for he and his family. HUGS Carrie
Prayers and thoughts to you, Hannah, Cooper and his mom.
OMG that is such sad news, our prayers go out to Cooper and his family. My heart is just aching hearing that news.
By the way Carrie you have every right to feel the way you feel and you are not selfish in thinking that at all! You are absoultely right, I often ask myself that very same question “Why do they have to suffer and be in pain on top of everything else??? It is insanly CRUEL!!