Holding mommy's hand, loving the new stander!
Hannah had physical therapy today. It was another day to work with the stander that we were thinking of getting for Hannah. Something to build up her muscles in her legs, knees, feet, etc.
This was our third week with the yellow trial machine, and Hannah lasted about 3 or 4 minutes this time. She really wasn’t fighting it at all (it helped we put her iPad on the tray). She just had a hard time keep herself up even with the restraints.
So her PT grabbed a different trial stander from the back. It was being trialed by another client of theirs, a little boy who happened to be there at the same time.
It is called the “superstand” pediatric stander, and it can go from a reclining type position to a straight upright position. It also secured Hannah in much better.
She loved it! It could possibly be because the way the straps were on her body that they helped keep her movement disorder minimized. It could also be that working out in a reclined position and slowly working up into a stand is a lot easier on her body. Maybe she liked the color better. For whatever reason, it seemed like a much better idea for Hannah.
We don’t think she is ready for a straight upright stander yet, and this new type gives us the flexibility of working up to a straight upright, as it can go into that position as well as dozens of reclining types of positions. Baby steps. But as you can see, she was a happy camper on it for about 10 minutes and still got a workout using her legs!
With having to deal with the insurance company and/or Medicaid, it will still likely be a couple of months before we get it. But I think this will be much better for her.
Hello Hannah and her mom, I am the mother of little Kaylee who will be 6 soon. she has gauchers type 3 and we live in durban south africa. kaylee is a happy lovely little girl who is still not walking or talking or eating solid foods as yet and suffers from seizures. they are so horrible to watch and you never know when they are going to happen. the worst is the jerking and jolting of her entire body at night which is getting worse and worse. it does not seem to wake her up but i cannot sleep when she does that. i would love to keep in touch with you and little hannah and of her developments as there is nobody else here in SA with gauchers type 3 so there is not much suppport for us.
Tasha Andrew
I have something similar you can try that you can get a backwards lean on if I recall.
I have something similar you can try that you can get a backwards lean on if I recall.
I’m so excited for her and happy that you found one that will be perfect for her. Love the joy I see in her face.