When I started Hannah’s blog back in 2008, this was the only blog or updated site regarding neuronopathic Gaucher’s disease. Since then, and thanks to the popularity of Facebook causes, more and more family’s are sharing their fight against nGD. I want to invite everyone to visit their sites, see their beautiful faces, and join their fight as well.
I’m so proud of these families for helping to create awareness about this horrible and cruel disease.
Addison – type 2, still fighting
Olivia – type 2, still fighting
Emily – type 3, still fighting
Kyle – type 3, passed away
Bailey – type 3, still fighting
Marina – type 3, still fighting
Joseph – type 2, passed away
I’ve left Kyle’s button on our blog, because his sweet little face still belongs on this earth. It’s not fair that any child should be taken away so young and so soon. I’ll always miss him. Along with Bertrand, Hannah and all the other rare kids–here and gone, Kyle is why I’ll keep fighting to push genetic research.