Ramping up on therapy

After our meeting with Dr. Raja, Hannah’s new neuro, we feel really motivated to start ramping up on Hannah’s therapies.   Even more so Friday after our quarterly visit with our early intervention physical therapist.

Right now, Hannah only has PT out of the house.   We had discontinued OT because for 8 weeks straight, Hannah would not participate at all.  As a matter of fact, she would even go into hysterics the minute we would go into the OT room.  Even with her PT now, she really does not participate, and we have mostly been working on getting her used to the stander.

However it was quite different with the PT who came to our house on Friday for the evaluation.   Hannah had never met her before, yet she had Hannah working harder than I have seen since we have been in Vegas!

Not only that, but Hannah has been making strides with her early intervention therapist such as actually starting to use the sign “more” and starting to pull blocks out of a box (a skill she had lost since the hospitalization).

The common denominator?  Home therapy (and talented therapists!).

With the help of our early intervention therapist and our medicaid case manager, I have a list of therapists who are home-based.   I called one this afternoon who does speech therapy and occupational therapy, and hopefully we can set this up.    I also have almost finished the paperwork for the Desert Regional Center who will give us the ability to get Hannah hippotherapy (horse therapy) since they only accept primary medicaid and the DRC vouchers.

I feel like we have been lacking on therapies since we moved here, mostly because the lack of quality therapists and also because Hannah just refuses to participate when she isn’t in a place where she feels comfortable.

But not anymore.  Even though the signs are small in the grand scheme of things, we are going to take these signs of improvement and run with them and try to improve them!

Comments

  1. Hannah is such a fighter. She draws a lot of strength from you. You are a fantastic momma Carrie. Keep on keeping on my friend.

  2. Maureen says:

    Good luck!

    Is Hannah able to tolerate the cap for her trach that would allow her to go swimming again? (I know that some kids and adults with trachs are able to go swimming (as long as their head stays above the water and they wear a special cap).

  3. therapists, good therapists, are beautiful heroes! way to go Hannah!