I knew this trip was going to be hard on Hannah. After all, she isn’t used to having such jam-packed days in a row like we did in Florida.
But I didn’t expect her to catch a bug of some sort. She has been running a low-grade fever for a couple of days (today being the first fever-free day) plus she just isn’t her playful self just yet. She really just wants to lie down and be cuddled all day (with the exception of sitting up to watch her Wiggles on her iPad). She is just really exhausted.
Her Tuesday thru Thursday nurse has been absolutely wonderful with trying to slowly get her back into a routine. She has been putting on her DAFO braces twice a day for 30 minutes, and Hannah has done really well in tolerating it even if she isn’t bearing any weight these past couple of days. Hannah has no interest in the stander at all and very little interest in sitting in her chair.
I got an email from the guy who ordered our stander, and it is ready! They just have to make sure it fits Hannah’s size requirements, and then they will bring it out to us. You know, I can’t even remember what color we ordered…that is how long it has been!
Tomorrow and Friday are more easy days for Hannah. No appointments except for her Early Intervention specialist whom Hannah just loves so it will be more like playtime than work. Also, thanks to a wonderful generous donation by my friend Julie, we are able to order Hannah some of the therapy items we have been longing for this past year including a special needs swing and therapy bench!
We got the keys to our new house, and we went by after school with the first of many loads of boxes to deliver. We figure the more boxes we move ourself, the less money we will have to pay movers if they just do the big furniture-type stuff.
As for me, I think I’m coming down with something too. I have had the beginnings of a sore throat all day, and I’m starting to feel like ick. Great timing, no?
I am hopeful that with this week of Hannah just resting and slowly getting back into a routine that she will want to be more active next week!
hope she’s better soon.
Poor little Hannah. I’m so glad you got to take her to Disney. I hope that you and her both feel better soon. Bless you Carrie.
If only you lived closer – I’d babysit so you could get well yourself! Get better soon. xo
Hoping you both feel better soon. I always come down with somthing when I fly.
So sad she is sick–and you too!! Try to rest and recover. Travelling is always so hard on our kids!!
Hello to a Very Special Family,
I’m still a follower of your blog….I’m not a participant of the computer community as such but Hannah and your family have captured my heart and it’s so wonderful that you all had such a fantastic time at Disney. The look on Hannah’s face is amazing as she sees her “Childhood Sweetheart”. I can imagine her excitement and your joy to see her happiness. Your other children are terrific also and it’s just so good to hear of this organization caring so much about children and the families.
God’s blessings to each of you.
Nana Waggs