I started the process last November of last year to get Hannah an appointment with Dr. Sanger down at Children’s Hospital Los Angeles. He is one of the leading pediatric movement disorder neurologists in the country, and from what I have researched, he is very into research new ways to control movement disorders.
It wasn’t until I asked Dr. Goker-Alpan, Hannah’s NIH pediatrician, for help that we finally got an appointment…and an urgent one at that! AUGUST 10th! So it looks like we are going to head out to Southern California for a few days next month.
I’m really, really looking forward to having Hannah meet with him. I’m really hoping that maybe he can give some ideas as to how to better control Hannah’s movement disorder – maybe different meds or something else – and to work with our local neurologist to implement his ideas.
I’m not getting my hopes up. I don’t want to set myself up for answers because I know that Hannah just doesn’t play by any textbook. But at least we are moving forward and trying. Daddy and I will do whatever we can to give Hannah the best quality of life. I’m hoping that Dr. Sanger will be able to help us with that.
How wonderful!Are you guys going to look into Angel Flights or something like that for your trip? Hope he is able to help Hannah.
So happy that the appointment is less than a month away! I hope that he can be beneficial in helping Hannah! Love you!
Praying that your visit with this Specialist goes well!!