Support

If you have found a link that is helpful for other families dealing with GD23, please contact me above!

Children’s Gaucher Research Fund – the only ground that directly funds research for Gaucher’s Disease type 2 and type 3

National Gaucher’s Foundation – Though specifically designed to support Gaucher’s Disease type 1, there is a lot of information on the site as well as a pretty active email list (great for learning about physical symptoms).

TheProjectCharity.org – When a child is diagnosed with a rare disease (or has yet to be diagnosed), The Project’s mission is to create a one-stop resource center to help empower parents to find all the information, resources, and support they need.

Patient Access Network (Gaucher’s Disease Fund) – Maximum awards for GD23:  $7500 per year for medication, $1000 per year for infusion visits