National Gaucher Foundation

National Gaucher Foundation
http://www.gaucherdisease.org

Hannah’s Story

Read Hannah's Story
Recent Posts

02.23.12 Speak, Crash, and Burn…and Breakdown

02.21.12 Second Annual World Rare Disease Day School Event

02.16.12 Building support

02.14.12 Soundtrack of my heart

02.13.12 If only Selena Gomez met Hannah

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How to Help

Hannah Ostrea Fund
c/o Wells Fargo Bank
640 South Green Valley Parkway
Henderson, NV 89052

All funds will be going towards the creation of our Little Miss Hannah Foundation
Hannah’s Diagnoses

* neuronopathic Gaucher Disease
* severe hypotonia
* choreathetoid movement disorder
* left eye nystagmus
* supranuclear gaze palsy
* breath-holding spells
* brainstem dysfunction
* ocular motor apraxia
* global devedelays
* hepatomegaly
* splenomegaly
* vocal cord paresis
* reflux
* enlarged aorta
* decreased blink reflex
* slight eyelid retraction
* interstitial lung disease
* hypersensitive gag reflex
* food aspiration
* increased startled reflex
* diffuse ligamentous laxity
* genu valgus abnormality
* IgA deficiency
More Gaucher Children

Addison
Olivia
Emily
Emilka
Elizabeth (Zebby)
Kyle
Bailey
Marina
Stella
Lincoln
Joseph

CGRF Summer 2010 Newsletter

National Gaucher Foundation
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