I thought today was going to be a pretty easy-going day. Hannah had her Cerezyme treatment downtown, and it went uneventfully and on time. For the first time ever, Hannah stayed awake during the entire 2-hour-plus infusion. Abigail went to work with Daddy for an hour or so, and she thought it was the best […]
[Continue reading...]Our busy week!
15 Jun by
We made it through our first week of summer with Abigail home and Ethan at camp. We survived! And it really wasn’t so bad. One week down, many to go! We have a lot going on this week: Monday: Cerezyme treatment, all day Wednesday: Physical therapy at TCH Thursday: Orthotics fitting, Occupational therapy at TCH […]
[Continue reading...]Understanding the “special” of “special needs”
14 Jun by
Before Hannah, I would look at other parents of children with special needs, especially moderate-to-severe special needs, and think “Wow, that is a lot of work, how do they do that? I don’t think I would be able to do that.” But that is all I saw — the “work” that was involved in taking care […]
[Continue reading...]A step backwards…
13 Jun by
After so many positive steps forward this past week or so, it was inevitable that we take a step backward somewhere. For the past three days, Hannah has refused to be spoon fed. Flat out, not going to have it, cry when she sees the spoon and food refusal. She has no problem putting a […]
[Continue reading...]Good physical therapy day
10 Jun by
I am so surprised that Hannah even made it through physical therapy today. She was feeling much better after using the Florastor, and her stomach flattened down quite a bit from the gas that had built up in her stomach. So I decided to give it a try. I’m glad I did. She made it […]
[Continue reading...]Texas Parent to Parent Conference coming up!
10 Jun by
There is a yearly conference for families of children with special needs that is put on by Texas Parent 2 Parent up in Austin in a couple of weeks. Even though much of the conference is dedicated to school-age children and autism/down syndrome, there still were a few great sessions that I thought would be very […]
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