I really don’t know what to talk about tonight. I can talk about how much we learned during her PT evaluation this morning or how much we enjoyed our developmental therapy or the informative conversation I had with Dr. Greg Grabowski this afternoon or Abigail getting into a fight at school or Scrubs ending its […]
[Continue reading...]Platelets on the rise…
6 May by
In the midst of all the chaos with the Hannah mouse that couldn’t be, we did receive some good news. We received Hannah’s platelet count. 149,000! This is the highest it has ever been, as she had been hovering between 93,000 and 106,000 during the four months before her Cerezyme treatment started. I just have […]
[Continue reading...]The “Hannah Mouse” roller coaster
6 May by
Today was one of those days with incredible highs and subsequent crashing down. Our family was given an amazing, incredible gift today. A local biopharmaceutical company had offered to create a “Hannah Mouse” for us, a genetically modified research mouse with Hannah’s unique DNA mutation. This was HUGE! The generosity of this company was so […]
[Continue reading...]Three months down… (Cerezyme treatments)
5 May by
Can you believe it has been three months since Hannah’s first Cerezyme treatment?! Hannah had her seventh IV infusion today, and she really handles it like a champ. The only issue today was that we had to wait over TWO HOURS for the pharmacy to deliver the Cerezyme to the Infusion Center. What a pain […]
[Continue reading...]How a little bear named Hope made history today
2 May by
Over the years, I have met some wonderful people online who have become an some of my closest friends. Being able to meet them in person, even just once, has helped solidify friendships that have lasted almost a decade. Throughout this journey with Hannah, I have also met some wonderful people. Some who have become partners […]
[Continue reading...]Novel Theory Explains Parkinson’s
1 May by
http://psychcentral.com/news/2009/04/30/novel-theory-explains-parkinsons/5622.html By Rick Nauert, Ph.D. Senior News Editor Reviewed by John M. Grohol, Psy.D. on April 30, 2009 In a study that reveals the clearest picture to date of neuron death in Parkinson’s disease, researchers at Columbia University Medical Center have found that a trio of culprits acting in concert is responsible for killing the […]
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