I started going through all my emails from the past couple of days, and I came across one from another mom which had some great ideas on it.  These are some great community-based charity fundraising suggestions.  She gave me permission to share it with all of you.  Some of these look like a lot of […]

After receiving Hannah’s 8-month DAYC assessment, our pediatrician recommended adding some private therapy to Hannah’s regimen.  Our goal is to teach Hannah as much as we can now so it will take longer for her to lose what she knows once the disease progresses.  Also, since she is somewhat delayed in some important areas, it […]

In the past month, I have been contacted by three families of children who have recently been diagnosed with Gaucher’s Disease type 2, the fast progressive form.  It breaks my heart that there are more babies even a bit younger than Hannah is now going through this hellish disease.   There is one family that I […]