Today, we were supposed to jump right back into things by meeting with Jenny, Hannah’s developmental therapist. She still can’t do the back to front roll yet, as she can make it to her side, but she just can’t figure out what to do with her arm yet. She can sit by herself and balance pretty […]
[Continue reading...]Be at Peace, Madeline “Maddie” Spohr
15 Apr by
After getting back from a wonderful week-long vacation away from Gaucher’s disease, therapies, and the stresses of researching to find who is working on understanding Hannah’s condition, I came home to read about little Maddie Spohr. My heart is breaking for Heather, Mike, and their families and friends. Be at Peace, Maddie. Please take a […]
[Continue reading...]The Magic of a Photograph
13 Apr by
Tomorrow is our last full day of vacation here in beautiful Southern California. It has been a nonstop week of activity, and it has been such a great trip so far. Easter egg hunts, Passover dinner, my parents party where I was able to catch up with a few old dear friends I haven’t seen […]
[Continue reading...]Waiting on the warm weather…
10 Apr by
It is kind of surreal being back in the house that I grew up with from the time I was 5 until the time I left for college (and for a brief stint after the Northridge earthquake of ’94 after I lost my apartment). Even though I haven’t been here in one year, it always […]
[Continue reading...]UC and Partners Awarded $23 Million to Transform Discoveries Into Real-World Health Solutions
8 Apr by
UC and Partners Awarded $23 Million to Transform Discoveries Into Real-World Health Solutions CINCINNATI—The University of Cincinnati (UC) and its affiliated health care partners will receive nearly $23 million from the National Institutes of Health (NIH) to bring innovations from the laboratory bench to the bedside and to applications within the community. The five-year […]
[Continue reading...]What a great night at Chic-Fil-A!
8 Apr by
We had the fundraiser at Chic-Fil-A tonight. I honestly did not have any clue what to expect. Ethan, Hannah, and I got there at about 4:45 PM, as it started at 5 PM. My friend and neighbor, Christy, met me there, and kept us company and “worked the wheel” (donate a dollar, win a prize) […]
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