What I thought was going to be a simple 5-minute well-check for Abigail turned out to be a bit more complicated. Abigail’s ears still look “miserable,” which I knew, so we will likely be having a third tube surgery some time soon. Also, he wants us to get Abigail an abdominal xray when we get […]
[Continue reading...]I’m exhausted…
7 Apr by
Okay, I think I hit that proverbial wall. You know, when your body is just so tired you just want to be lazy and sleep? During Hannah’s 2-hour Cerezyme treatment, I fell asleep for almost an hour of it. I remember watching TV with her sleeping on me and the drape half-open around our area. […]
[Continue reading...]Regenerative Medicine Offers Hope For Incurable Diseases
7 Apr by
Not sure how this could or may pertain to GD, but it is worth learning more! Regenerative Medicine Offers Hope For Incurable Diseases Revolutionary stem cell therapies could replace diseased body tissues, offering enormous promise for patients with incurable conditions such as Parkinson’s disease and diabetes. Stem cells are immature cells that can divide into […]
[Continue reading...]Wonderful gesture from a friend
6 Apr by
I got a box a few days ago from some friends of ours from New Orleans. We actually met this couple in Russia, when we were finalizing our adoption for Abby, and they were finalizing their adoption of their son. They are only a few weeks apart in age. We have kept in touch over […]
[Continue reading...]Sleep apnea, Angel Care Movement Sensor Monitor … more paranoia?
6 Apr by
Hannah has had a cold for the past 3 days. Just a runny nose and congestion, but it definitely affects her when she is sleeping. She has times when she snores for a bit. But then there are times, like right now, when she is incredibly quiet that I can’t even hear her breath. (And […]
[Continue reading...]NIH Take three!
5 Apr by
Daddy and I have been going back and forth over this NIH trip. The main obstacles were 1] Daddy taking off more work, 2] Money, and 3] Ethan and Abby. We just can’t afford to fly the kids to DC and the additional hotel/food/etc. I REALLY want Daddy to go to Detroit with me next month […]
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