Off to find Dr. Wustman and Dr. Clark to see what is going on with this! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ The Michael J. Fox Foundation Awards $4.6 Million To 10 Industry Teams For Parkinson’s Drug Development Research 1/23/2007 Brandon Wustman, PhD, and Sean Clark, PhD, of Amicus Therapeutics will attempt to develop drugs that take advantage of a […]
[Continue reading...]Gaucher’s Disease and Related Websites
4 Apr by
Gaucher Organizations: Children’s Gaucher Research Fund – http://www.childrensgaucher.org/ NGF – http://www.gaucherdisease.org NORD – http://www.rarediseases.org NTSAD – http://ntsad.org NFJGD – http://nfjgd.org Canadian Society for Metabolic Disease Gaucher’s UK – http://www.gaucher.org.uk March of Dimes – http://www.modimes.org NGF of Canada – http://www.gaucher.org Other Sites to Check Out: Medline Plus: http://medlineplus.gov NIH – http://www.ninds.nih.gov National Center for Biotechnology Information […]
[Continue reading...]If you want bi-weekly Hannah updates via email
4 Apr by
I have had a few people ask if I could put something together where they didn’t have to visit the blog all the time to get updates on Hannah. So I am putting together an email list for those of you who want me to email you an update on what is going on with […]
[Continue reading...]National Institute of Health update
4 Apr by
I have had so many wonderful comments on my post below regarding whether or not to bring Hannah to the NIH. There is just so much to think about. The truth is, we already have the best of the best neurologists for Hannah, who actually used to be at the NIH. Dr. Sidransky even admitted […]
[Continue reading...]Hannah’s Bloggy Giveaway Winners!!
4 Apr by
Over 100 entries to Hannah’s Giveaway, thanks to these wonderful donations! If you are a winner, please email me with your details (address, email, etc.) so I can get your prize delivered to you!! Children’s book (signed by the author) – #110 Lily K $10 Barnes and Noble card – #34 aikjane Blog Makerover by FlibbyPie Design […]
[Continue reading...]New therapy helps boy with rare disease
4 Apr by
New therapy helps boy with rare disease CHICAGO (Reuters) – A drug used to suppress the immune system in cancer and rheumatoid arthritis has helped extend the life of a Minnesota boy struggling with a rare and deadly form of the genetic disorder Pompe disease. A team of researchers led by Dr. Nancy Mendelsohn of […]
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