I haven’t been able to find out any more details on the press release from Neuraltus’ regarding their funding for a new Gaucher’s Disease treatment. I could be wrong in assuming, but since they work in neurodenerative diseases that they must be working on something for type 2 or type 3. I have had no […]
[Continue reading...]Neuraltus Pharmaceuticals Funding for a Gaucher’s Disease drug?
I’m going to work to contact this company and see if I can get more details if this applies to GD2 or GD3! MENLO PARK, CA–(Marketwire – March 26, 2009) – Neuraltus Pharmaceuticals, Inc., a privately held pharmaceutical company developing proprietary small molecule drugs for neurodegenerative diseases, today announced the completion of $17 million in […]
[Continue reading...]Feeding update, developmental therapy, and Abby’s tubes
Busy day today… Hannah had her developmental therapy session today. She absolutely loves Jenny, our therapist. Jenny was so impressed that Hannah actually sat up and balanced on her butt for almost 20 minutes without falling. My baby girl is getting the sitting thing down — she is even starting to put her hand out […]
[Continue reading...]Happy 8-month birthday, Hannah!
Boy my little girl, you have kept me on my toes for 8 months now!! You have grown so much the past month, not just in size, but in all the tricks you can do. I love watching you stand up in your exersaucer, “ba-ba-ba” to me, and laugh hysterically at the Wiggles still! What […]
[Continue reading...]Baby Food Aversion Issues
Let’s just add ANOTHER complication to Hannah’s life, shall we? (Yes, note the sarcasm). We just met with Hannah’s occupational therapist, and it seems as if my Little Miss Hannah has possibly developed an aversion to baby food. It doesn’t matter what flavor, peas, pears, sweet potatoes, applesauce, etc. It has gotten to the point […]
[Continue reading...]Please, please vote for my “support”
TheProjectCharity.org, as many of you know, is a new organization that was created by an amazing woman, Nicole Boice, to help parents just like me find support, resources, and valuable information when dealing with rare diseases. As all of you know, I have had a helluva time trying to find anything, as I have felt […]
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