Hannah had her 5th Cerezyme treatment today, and it went really well. Also, we didn’t get the results back from her DNA sequencing to tell us if it is type 2 or type 3 (see post below). I hate to admit I am not too terribly disappointed for some reason…
[Continue reading...]Do I really want to know what type?
22 Mar by
Tomorrow morning, Hannah has another Cerezyme treatment so we will be spending the day down at TCH. We are also possibly getting the results of Hannah’s DNA sequencing that should give us some insight into whether we are dealing with type 2 (fast progression of the disease) or type 3 (slower progression of the disease). […]
[Continue reading...]Hannah’s Facebook Cause – almost 1000 members!
22 Mar by
I would have never believed Hannah’s Facebook Cause page would have grown so fast! We have over 930 wonderful people believing in our hope to find a treatment for Hannah to save her life. Thank you so much! If you haven’t joined yet, just click below – we’d love to have you!
[Continue reading...]Hannah Babbling Videos
21 Mar by
Just some videos taken last week. Hannah has started babbling with her “ba-ba-ba-ba-ba” constantly. The second one she decided not to babble to to find a new chew toy!
[Continue reading...]Sigh of relief…
21 Mar by
Good pediatrician appointment. Would you believe Hannah weighed in at 18 lb 7 oz today! Of course that was fully clothed with a wet diaper, but still, that is almost a pound since 3 weeks ago (she was still fully dressed then too!) My girl is getting big! Her ear infection is completely cleared – […]
[Continue reading...]Choking scare today
20 Mar by
I am completely paranoid now. Hannah has a lot more drool in the past month or so. We have attributed it to beginning of teething, although there are no teeth breaking through yet. This has caused her to choke on her drool just for a couple of seconds to clear her throat. Today, she had […]
[Continue reading...]
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